
The Ohio Health Registry, started by a physician, hopes to sign up 200 people who live near oil and gas activity.
Julie Grant / The Allegheny Front
The Ohio Health Registry, started by a physician, hopes to sign up 200 people who live near oil and gas activity.
Julie Grant / The Allegheny Front
Julie Grant / The Allegheny Front
The Ohio Health Registry, started by a physician, hopes to sign up 200 people who live near oil and gas activity.
Julie Grant / The Allegheny Front
Dr. Deb Cowden, who is in the background facing the camera, has been leading health registry sign up events, like this one in Youngstown.
A dozen people are scurrying around a church basement in Youngstown, Ohio. Theyâre arranging tables and chairs, setting up paperwork, and hanging up signs that read, âOhio Health Registry.â
âThe Ohio Health Registry is really an attempt to collect the contacts of people who live close enough to any aspect of shale development, that they might be affected,â said Dr. Deborah Cowden, a family physician from the Dayton area, who started the effort.
Cowden drove three and a half hours east this morning to organize the registration, while others came in from Oberlin, Cleveland and Lake County to register people in Youngstown.
âThis is the medical questionnaire, and Iâm going to read some instructions,â a registrar tells one person who has shown up to fill out the forms, which take about 15 minutes to fill out.
Participants are asked their proximity to gas development, and about any current health symptoms â everything from levels of fatigue, nausea, and asthma, to whether they have a diagnosis of cancer, their mental health, and their family health history.
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Martin Senganec, age 60, who is a truck-driver, filled out the registration forms at a similar event in nearby Lowellville. Heâs heard about a new frack waste injection well being permitted near his home. âI live less than a mile from what theyâre building there, and Iâm worried about it,â he said.
Sengenec remembers the magnitude 3.0 earthquake near here five years ago, that Ohio regulators linked to fracking. Heâs also concerned that this area has become a dumping ground for fracking wastewater, a high salinity, chemical-laced brine.
Sengenic doesnât think the state is ensuring that his drinking water well will be protected from contamination.
âThey say itâs not going to harm. I have well water, all the people around here have well water, and thatâs what Iâm worried about. If that hurts thatâŠonce the well is contaminated, you canât do nothing with it,â he said.
Sengenic doesnât know how the health registry will help. âIâm not sure, to be honest with you. It might not do anything, I donât know,â he said.
More and more studies have been making connections between living near gas development, and the risk of some health problems, like headaches and anxiety, low birth weight babies, and cancer.
Cowden wants the health registry to provide data that will help further this kind of research, as fracking continues to grow in the state.
âIf we are going to do this, why are we not attempting to keep track, so that we might be able to help people if they have a problem?â she asked.
Ohio regulators say they do respond to health concerns. Rebecca Fugitt, assistant chief of the Bureau of Environmental Health and Radiation Protection at the Ohio Department of Health, says they donât get many complaints from citizens about the fracking industry.
âNo, we only get, maybe⊠itâs less than five a year,â she said, ââŠto be honest, it really is. We donât get very many.â
The Ohio Department of Natural Resources, which regulates the oil and gas industry, also gets few health complaints from people living near these operations. The Allegheny Front analyzed thousands of complaints by citizens to ODNR between 2009 and 2018, and found just 10 reporting headaches, rashes and breathing problems. But ODNR did receive 438 complaints about odors, according to The Allegheny Frontâs research. Certain odors can indicate pollutants in the air.
Fugitt says the health department does respond to citizens who think pollution from oil and gas development, or anything else, is harming their health.
âWe work with them on a case by case basis to investigate their complaint,â she said. âAnd then if necessary we coordinate with other state agencies to collect environmental data as needed to respond to their concerns to determine if they have been exposed to any contaminants.â
Fugitt says Ohio tracks various health statistics, just not specifically in relation to fracking activity. Pennsylvania and Colorado do have registries for people living near the oil and gas industry to report their health concerns.
But some health advocates say Ohio Department of Healthâs efforts to respond to individual complaints is not enough.
âIâll tell it like it is, I think itâs shameful,â said Raina Rippel, who runs the Southwest Pennsylvania Environmental Health Project.
Rippel wants the government to pro-actively collect community-wide health data on people in shale gas communities, so it can better regulate the industry, and protect public health.
Her organization started a national health registry for fracking in 2017. An analysis of the first 100 to register found that people living within a quarter mile of a gas development were more likely to report coughs, headaches, and anxiety, compared with those a mile or more away.
She says this data should be collected in a more systematic way.
âWe have to do our best to fill in the gap,â Rippel said. âI think that this is really us, these small groups, these groups that donât have a lot of resources, doing the work we know needs to be done. Hopefully the states and/or the federal agencies will ultimately pick up the ball that theyâve dropped.â
Marcellus Drilling News, an industry publication, criticized Rippelâs project, writing that it encourages people to blame every headache and cough on gas development.
The group behind the Ohio health registry plans to offer its database to scientists.
âWeâre actually a little more than just a registry because weâre also collecting baseline health data,â said organizer Deb Cowden.
Researchers say there could be some use for this data, but there is concern about the validity of citizen-led health registries.
Brian Schwartz, Professor of Environmental Health and Engineering, Epidemiology, and Medicine at Johns Hopkins Bloomberg School of Public Health, whose research has found an association between fracking and exacerbation of asthma in nearby residents, would be concerned that participants in the health registries might not be representative of the community at large.
âDo registry members represent all persons in an area, all affected persons in an area, or just a very selected subset of persons in an area?â he asked in an email to The Allegheny Front.
Elise Elliott is a postdoctoral fellow at the Harvard T.H. Chan School of Public Health, whose study found a link between how close people in Ohio live to unconventional gas wells, and reported health symptoms, like stress and fatigue.
She says health registries can still be helpful.
âThese types of studies really help with hypothesis generation,â Elliott said. But to be useful to researchers, she said, âIt really matters how the data is collected and what kind of data is collected.â
The group in Ohio is not directly working with researchers in its data collection. But Deb Cowden says it is being done with researchers in mind, to be helpful to them.
Her registry so far has collected information from about 65 people, and with more events like the one in Youngstown, is hoping to reach 200 by the end of the year.
This is part of the series, âWhoâs listening?â examining claims made by Ohio residents, and how state regulators have responded, supported by the Fund for Investigative Journalism and the Sears-Swetland Family Foundation.
StateImpact Pennsylvania is a collaboration among WITF, WHYY, and the Allegheny Front. Reporters Reid Frazier, Rachel McDevitt and Susan Phillips cover the commonwealthâs energy economy. Read their reports on this site, and hear them on public radio stations across Pennsylvania.
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